For the Caregiver
Being the caregiver to a terminally ill patient is a difficult job and one most of us hope we'll never have to do. When you're involved in caring for a person with malignant mesothelioma, the tasks you face will probably seem daunting and sometimes impossible. You will be relied upon for all sorts of responsibilities, from everyday tasks like cooking, cleaning, and shopping, to bathing and feeding your loved one, to managing his/her financial affairs. It will no doubt seem like more than one person can handle.
It is of the utmost importance for you to maintain your health - both mental and physical - while caring for a person with mesothelioma. If you're sick or burned out, you can't care for the patient properly. Above all, you need to realize that it's okay to ask for help or to take some time off when needed, even if it's just a few hours spent with a few friends or even by yourself, doing the things you enjoy doing. When you're feeling poorly, the quality of care you can provide will diminish as well, so it's best to take time to refresh when necessary.
Finding Support
Unfortunately, for some caregivers, it's difficult to find other family members and friends who want to help. That is when it's necessary to look outside your circle of family or friends for support. So-called "support groups" have been around for a long time and you can probably find one for caregivers of cancer patients at a hospital or other medical facility near you.
Thanks to today's technology, it's not difficult to find online support groups run by individuals who know the ins and outs of dealing with cancer patients. These groups are available on the web if a group is not available near your home.
Whether in person or online, support groups can offer:
A forum where you can vent your frustration, anger, or other emotions what are welling up inside of you. Others there are in the same position - or have been in the past - and they can help you work through these difficult feelings.
A source of information sharing on mesothelioma, including current advances in treatments and other pertinent information that may help you or the patient.
A place where you can enjoy social interaction with others. Many caregivers tend to be house-bound, so the opportunity to get out and be with others who have like concerns can be a relief and a welcome respite from your burdens. (If you're using an online group, try to use a computer that's not in the home of the patient, so you can "get away" for a while.)
Reassurance that others are facing the same challenges as you. Such groups allow you to spend time with someone who understands what you're dealing with, especially when friends and family members just don't seem to get it.
To locate a mesothelioma support group near you or an online support organization, check out:
American Cancer SocietyGilda's Club
OncoChat
The Wellness Community
